Thursday, February 24, 2011

Busy Days Ahead

Bella, Jim, me and my dad went to the horse shows this weekend.  We wanted one last weekend with Bella before EVERYTHING is focused on Wyatt.  We had a blast and really enjoyed watching those beautiful horses that we have all grown to love.  When we were there I noticed a boy in a wheelchair.  In my heart I knew he had spina bifida.  I got near his mother and could not stop myself from asking her if she minded me asking her some questions about her son.  She said "No, that will be great!"  I then froze! The next thing I said was "He has spina bifida doesn't he?"  She said "Yes he does." And then we acted like we were long lost friends and began talking for another 30 minutes!  Isabella was probably ready to choke me!  It was so comforting to see a family that has walked our path and Spina Bifida is about the least significant thing about their life.  I am so glad that God placed us together and we were able to meet and share this bond of a diagnosis.  As the day went on, I would see him wheeling around, happy, smiling and just being a kid!  My heart smiled at that because I know Wyatt will be okay.  Monday he is scheduled for surgery to lengthen his Achilles tendon on his right foot.  This means he will have an above knee cast for a total of 6 weeks, it means he will be cranky and grouchy, he will have more limited mobility than he is used to but it also means he will hopefully be well on his way to walking.  We have so many people praying for us and all I can say is "Thank You" and keep them coming for the road ahead of us. 

February, not just a month for love for me!

You were so loved.  You came to us at such a low time!  While fighting cancer you became our lighthouse, our ray of light, our soft place to fall at the end of a long day of radiation treatments.  Some days, you and Bella were our only reason to smile.  I knew something was wrong and just never dreamed you were gone.  February 23rd we found out that you had already passed on to be with Jesus.  Blood tests would later confirm this but I knew within myself that this was true.  What happened? Had I done something wrong?  Some days I still ask myself these questions but I think God gave us you to help us through that really hard time in our life. You certainly did that! I know that you are watching over your brother and sister and I smile inside each time I think of that.  I know that I will miss you always.

Monday, February 14, 2011

Knife through the heart

We had an awesome weekend!  Saturday was the Dixie National Rodeo.  Jim, Bella, her friend Haley, Wyatt, my dad and I went early Saturday morning to Jackson.  We first watched the parade of like 2000 horses. Wyatt was in heaven.  Then we watched the rodeo and we all LOVED it.  We had so much fun, it was a long but GREAT day.  After we got home and settled in, Wyatt started leaning over and stretching his back again.  He would rub his scar on his back that he calls his Bo-Bo.  Finally, as he is rubbing, he looks at me and says, "Mommy, take my Bo-Bo off!"  I felt as if the wind had been knocked out of me.  As I was holding back tears, I told him I wish I could make it stop hurting and I rubbed his back and gave him a massage.  I think that was the first time in a LONG time that I felt hurt to my soul.  My sweet little baby that has touched so many people and ultimately changed our life for the good forever probably lives daily with more pain than I ever will and you would NEVER know it.  He always has such a brave face.  I wish I could take his place and endure his pain, any mama would want to keep their baby comfortable and safe.  All I can do is pray the God will protect Wyatt and hold him in His hands of mercy and grace.

Spina Bifida Clinic

So February 3rd we had our SB clinic.  Wyatt had to have a video urodynamic study done at Baptist Hospital early in the am and then we went tour SB clinic.  Well luckily, Wyatt's kidneys are still good and we are not required to start cathing to keep them healthy.  Darlenia still wants us to consider starting to cath soon so we will be dry by first grade and Jim and I really want him to be so we will probably start soon.  Neuro had only good things to say.  I did ask if it was common for sb kids to have pain in the low back at times because Wyatt will sometimes rub his back like it hurts him.  They said that yes it could and those muscles could be tight and be uncomfortable.  Then ortho came in!  Yep! We need right achilles tendon lengthening.  This will be done February 28th and he will be casted for 6 weeks total.  Dr. Haber will recast every 2 weeks to look for pressure sores.  Amazingly, I am ok with this for the time being.  I am sure when the time comes to give them my baby over, I will not be ok.  We are scared but know that this is a step we need to get him walking.

Friday, February 11, 2011

For Shea

Below I linked a post from Shea's new mommy.  She has now received the most devastating news that Shea has been scheduled to be transferred from the baby orphanage to the institution.  Generally when special needs children are transferred there, they are left in the bed alone all day with little to no interaction.  Please have all your prayer warriors working on this one.  Pray that the transfer does not take place, pray that if it does that Shea will be oh so loved by the people there and cared for.  Pray that his new mommy and daddy will soon be allowed to bring him home.  I can not imagine Wyatt being left to fend for himself and not being loved on each and every day.  Thank you for your prayers!

Controlled Chaos!: one more angel on a grey cloud day.... transfer sc...

Controlled Chaos!: one more angel on a grey cloud day.... transfer sc...: "The happenings of this very long day... Tuesday was supposed to start out with trips to see two patients and put in some overtime at work.&..."